Supporting a Loved One with Parkinson’s Disease
Parkinson’s Awareness Week provides us with an important opportunity to raise awareness and educate ourselves about the unique challenges faced by those living with Parkinson’s disease. Whether you have a loved one living with Parkinson’s or simply want to contribute to the broader community, there are many ways to provide meaningful support. The journey with Parkinson’s can be tough, but with care, patience, and understanding, we can help those affected lead fulfilling and independent lives.
At Helping Hands, we’ve been supporting customers living with Parkinson’s for over 35 years, and one of the main things we’ve learned about the condition is just how much of a difference loved ones can make. Below, we’ve outlined some simple steps you can take to support someone after a Parkinson’s diagnosis.
Educate Yourself
Knowledge is one of the most powerful tools when it comes to supporting someone with Parkinson’s. By understanding the symptoms, progression, and treatment options, you can offer more informed and effective support.
There are many excellent resources available from organisations such as Parkinson’s UK, The Cure Parkinson’s Trust, and the Michael J. Fox Foundation. These organisations provide information on the latest research, medical advancements, and advice for caregivers. Taking the time to learn about the condition will help your loved one and give you confidence in how to offer meaningful support.
Offer Your Help
People with Parkinson’s may find certain daily tasks increasingly difficult, from preparing meals to getting dressed or even writing and typing. While it’s essential to respect their independence, offering a helping hand when needed can make a huge difference to their quality of life.
Rather than waiting for them to ask, be proactive with your offers of support. You could help with shopping, cooking meals, tidying up, or accompanying them to medical appointments. Let your loved one set the pace – some days will be harder than others, and being adaptable to their needs will help them feel understood and valued.
Promote Exercise
Exercise is a fantastic way to help manage the symptoms of Parkinson’s and improve overall well-being. Regular movement can help with mobility, balance, and coordination, as well as boost mood and energy levels.
While intense physical activity may not always be possible, there are many gentle forms of exercise that can be highly beneficial. Activities such as walking, swimming, yoga, and Parkinson’s-specific exercise programmes can all help maintain flexibility and reduce stiffness. Many local community centres and charities also offer Parkinson’s-friendly exercise classes, which can be a great way to stay active while meeting others who understand the condition.
Help Them Retain a Sense of Normality
Parkinson’s interferes with day-to-day life and can make someone feel that there is no normality left. This can be made worse because others around them focus on what is going to happen in the future and how to deal with the symptoms, rather than focussing on what the person can do in the here and now. It is understandable that loved ones want to step up and help out as much as possible, but ‘taking over’ and doing everything for them will be counter-productive in the long run.
The person may also feel that they are now being seen only as a person with Parkinson’s, rather than who they always have been. Taking their mind off their condition whenever possible is helpful for making them feel like themselves again – for instance, you can continue to undertake hobbies and interests that you’ve always enjoyed together.
Be Patient
Patience is one of the most valuable qualities you can offer when supporting someone with Parkinson’s. The condition can make everyday tasks take longer and communication more difficult. It’s important to allow your loved one the time they need to express themselves and complete tasks without rushing or interrupting.
There may be days when symptoms are worse than others, and frustration can set in – both for them and for you. Try to remain calm, offer reassurance, and acknowledge their feelings. If they struggle to communicate, speaking slowly, making eye contact, and using gentle encouragement can be helpful. A little patience goes a long way in making someone feel valued and supported.
So let’s use this Parkinson’s Awareness Week to spread awareness, support research efforts, and show those living with Parkinson’s that they are not alone. Whether it’s a family member, a friend, or someone in your community, your support can truly make a difference.
